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    Good sleep comes at a Good cost

    As slow as a glacier, I've been suffering from pathetic sleep since way before Misty's cancer diagnosis.

    For a better part of 2020 wearing my birthday FitBit watch, sleep was like a job, except I wasn't able to get 8hrs in. More like a 1.5 hour nap here, dose for 2 hours there, or lay down for 2.75 hours anywhere.

    FitBit was keeping track of my shit sleep.
    Everyday I'd score Poor, Poor, Fair, Poor, Poor, Poor, Fair, Yada Yada yada.......

    My New Year's resolution for 2021 was to do something about it and the journey for good sleep commenced.

    1st sleep study consultation January 5th 2021.
    Last edited by Pete's Draggun; 09-23-2021, 01:15 PM.

    #2
    At the consultation with the sleep Dr., I was given a sleep monitor to take home for the night.

    The monitor hooked up a breathing tube to my nostrils and a index finger clamp.

    Easy enough....

    Done-zoe

    Comment


    • Youfreeme
      Youfreeme commented
      Editing a comment
      SpaceMan how are you supposed to sleep like that?

    • SpaceMan
      SpaceMan commented
      Editing a comment
      i got a few hours in by not sleeping much the night before...i forgot to mention that at my hospital they just give you a time to come with no regard to your regular sleep schedule.....anyways it didnt matter much i never heard from that doctor again or from the hospital for that matter....socialized healthcare is fucking awesome ?

    • Pete's Draggun
      Pete's Draggun commented
      Editing a comment
      SpaceMan

      My insurance wouldn't cover the expensive head hook up overnight stay in the bed.
      Insurance said to do the at home cheaper route first.

      I do the overnight head hook up after the surgical procedure. Probably like late October after healing from surgery

    #3
    January 18th The evaluation came back.

    The results came back so bad the doctor said something must have happened with the equipment.

    Either the finger clamp lost connection or The nostril air line moved.

    Doctor: Let's do another test.

    Pete: Another test?

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    Comment


      #4
      This time around, I used some surgical tape on the index finger clamp and also taped the nostril tube to my nose, behind my ears, on my neck and on my chest.

      I was set for none of this stuff to come off or loose.

      Comment


      • Din Djarin
        Din Djarin commented
        Editing a comment
        Damn, lots of stuff on ya doesn't make it easier.. Even if t would stay on

      #5
      February 10th The evaluation came back.

      The results came back bad again.

      1st test I stopped breathing 41 times an hour
      with an oxygen saturation of 83 percent.

      2nd test I stopped breathing 42 times an hour with an oxygen saturation of 81 percent.

      This was medically alarming from my doctor and the staff of nurses.

      Doctor: Pete needs sleep apnea equipment like yesterday!

      Comment


      • Din Djarin
        Din Djarin commented
        Editing a comment
        You got a whole staff of nurses worrying about you huh. Sounds like you're in good hands

      • Pete's Draggun
        Pete's Draggun commented
        Editing a comment
        Din Djarin

        3 nurses
        6 hands
        3 mouths

      • Amerijuanican
        Amerijuanican commented
        Editing a comment
        Lol!
        which one is the Head Nurse?

      #6
      All worth it if it gets ya good sleep! As bad sleep comes at a bigger cost. I can relate lately.. Slept like a baby most of the time from march til end of august, when I lived in a place i could stay max. 6 months (compensation of my landlord for the abominable circumstances he put me up with before march :P )
      New place is almost finished, but have been sleeping at my parents place since august 30th and am thoroughly through doing that fulltime. Gonna invest in a new bed at my new place too Can't wait! Not gonna be cheap on it either, bed I slept in at that compensation place (which was furnished) was awesome. Totally worth like €500

      Comment


        #7
        Now I need all this stuff in my bedroom

        Sleep machine
        Hoses
        Water
        Air tunes
        Head gear

        I get into a more Q & A with my doctor on just how serious is my condition.

        She said honestly Pete "You could have a heart attack or stroke in your sleep"

        Pete: I can't believe it.

        Doctor: yes Pete, you could die in your sleep

        Pete: what's this oxygen saturation number 81 percent

        Doctor: normal healthy is in the middle/ high 90s

        The Doctor had me try an experiment. She put the index finger clamp and hold my breath for as long as I can.

        I held my breath until I gasped for air.
        My oxygen saturation level was at 93 percent when I took a breath.

        The Doctor said in the low 80s is extremely life concerning.



        Comment


          #8
          This heart attack/stroke stuff was quite a shock for me.

          I eat good
          My weight is ideal
          I exercise 4 times a week
          I've been alcohol/drug free since Thanksgiving 2020

          I have no stress
          I have no depression
          I'm mentality and romantically happy

          WTF!

          Comment


            #9
            Yeah, heard something before about some guy. They were amazed he didn't notice his apnea earlier in life, and could also have died in his sleep. He stopped breathing several times during a night. Now wears some kind of oxygen mask

            They found out because he suddenly got complaints, somewhere in his forties.. like always tired, never felt rested etc. I kinda experience something similar lately but know its mainly due to changed circumstances and routine

            Comment


              #10
              Months February 19th to March 31st I'm using the sleep apnea machine with the nose breather and I can't fall asleep without the air from the machine blowing through my mouth

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              Then I try the full face. Failed.
              when I'd turn to my side, the seal would break cause air to leak again.

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                #11
                The sleep apnea machine, hoses and masks are an epic fail for me. Time for plan B


                June 10th

                I see a ear nose and throat doctor.

                He tells me that he's going to put me under a drug induced sleep using a mild general anesthetic to see why I'm stopping my breathing.

                During this procedure he'll watch to see what my mouth, nose, tonsils and tongue are doing using a camera and line the thickness of a needle.



                Comment


                  #12
                  July 1st

                  I'm put under drug induced sleep.

                  15 min later....... done

                  Doctor says that my tongue is dropping to the back of my throat and cutting off my oxygen when I'm on my back. On my side I breathe fine.

                  He could take my tonsils out, but it wouldn't be a big enough change to alter the oxygen level results

                  He could fix my deviated nose cartilage, but it also wouldn't be a big enough change to alter the oxygen level results.

                  He could do both tonsils and nose but it still wouldn't be a big enough change to alter the oxygen level results.

                  Comment


                    #13
                    Yeah Pete I know someone who is going to post covid pulmonary rehab because their oxygen levels are hanging steady around 85% when they breathe without supplemental oxygen. Just to put it into context. 81% is extremely low

                    Sucks sleep apnea equipment is so cumbersome though. Someone should get to work improving and streamlining on that!

                    Sometimes I wonder if I have some sort of sleep disorder. Probably not sleep apnea, because I've never had complaints from romantic partners about snoring. But I literally never feel well rested when I wake up, I feel more like I ran a marathon in my sleep and my body aches really bad every single morning and only starts to feel better once I've been up and moving and stretching a bit

                    Comment


                    • Din Djarin
                      Din Djarin commented
                      Editing a comment
                      Could it be your bed? I slept like a baby on my temporary bed in the furnished apartment Amazing change! Which I hope and expect to return to shortly; when i get my new bed for my new place

                    • Meliai
                      Meliai commented
                      Editing a comment
                      Din Djarin possibly. I have a memory foam mattress and I'm not the biggest fan. It doesn't really provide the support of a traditional spring mattress.

                      My son has a spring/memory foam hybrid though and that shit is the most comfortable mattress i've ever experienced. I should swap out our mattresses and hope he doesn't notice lol

                    • OP1
                      OP1 commented
                      Editing a comment
                      That sounds like a ringing endorsement. Care to mention the make and model Meliai ?

                    #14
                    Time for plan C

                    The surgical solution

                    https://www.inspiresleep.com/

                    The doctor will insert this small unit (like a cancer infusion port) into my chest.

                    The first wire will be pushed up through my neck and attached to the under belly of my tongue.

                    The second wire will be pushed down just below my ribcage to monitor breathing movements.

                    10 year battery
                    Metal detector resistant
                    NON chest MRI compatible

                    What's supposed to happen during my sleep.
                    I stop breathing

                    1. Ribcage breathing sensor wire detects no breathing movement

                    2. Chest unit sends electrical current from inside the battery compartment to the tongue wire

                    3. Tongue wire stimulates the tongue to move forward to push away from the back of the throat.

                    ^
                    All this without ever waking me up.

                    Comment


                      #15
                      Originally posted by Meliai View Post
                      But I literally never feel well rested when I wake up, I feel more like I ran a marathon in my sleep and my body aches really bad every single morning and only starts to feel better once I've been up and moving and stretching a bit
                      ^
                      This is me to a tee

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